start-here · Cancer
Cancer information and support
Dutch cancer research and patient support organization.
Resources
Curated external links, organized as Start Here, Go Deeper, and My Experience.
This site distinguishes lived experience from medical documentation.Deze site onderscheidt geleefde ervaring van medische documentatie.
Curated, not collectedSamengesteld, niet verzameld
Where to go for things I cannot tell you.Waar je terechtkunt voor dingen die ik je niet kan vertellen.
start-here · Cancer
Patient organizations network
Umbrella federation of Dutch cancer patient organizations.
start-here · Lymphoedema
Lymphoedema basics
Dutch patient association for lymphoedema and lipoedema.
go-deeper · Lymphoedema
Clinical and research resources
International best-practice documents and research on lymphoedema care.
go-deeper · Cancer
In-depth cancer information
Detailed patient-facing information on cancer types, treatment, and life after treatment.
go-deeper · Lymphoedema
Research and advocacy
Research funding and patient education on lymphatic diseases.
my-experience · Health & Work
Chronic illness and work
This site's own essays on disclosure, visibility, and returning to work.
my-experience · Lymphoedema
Lived experience
This site's own lymphoedema resource hub, written from lived experience.
my-experience · System navigation
Personal health timeline template
Printable template for building a date-anchored care timeline from your own records.
my-experience · System navigation
Appointment companion worksheet
Bring questions, symptom changes, and next-step ownership into specialist visits.
my-experience · System navigation
Record-keeping guide
Practical naming and chronology habits to preserve evidence and reduce reconstruction work.
my-experience · System navigation
Appointment-prep checklist
How to prepare questions, evidence, and follow-up expectations before each appointment.
my-experience · Self-management
Travel planning from lived experience
Personal travel-planning experience for chronic swelling management; not universal medical instruction.
Keep goingGa verder